Sarcoidosis
of

 Long Island

SARCOIDOSIS
OF
LONG ISLAND

Sarcoidosis of Long Island 

Sarcoidosis Awareness Month of April is coming soon!!! 
SARCOIDOSIS OF LONG ISLAND WILL BE BUSY THIS YEAR. WE PLAN ON MAKING SURE WE GET THE WORD OUT.

YOU ARE NOT ALONE!!!

































Guess What Is Coming Up?

April 3,2019

Buffalo Wild Wings Eat In Event All Day

11am-12am

EAT WINGS. RAISE FUNDS.

*The 10% donation is contingent on the organization raising at least $300 of pre-tax sales during the promotion (subject to change in our discretion).
Other restrictions may apply. Please see participating location for details. ®2015 Buffalo Wild Wings, Inc.

On the day listed below, present this ticket to your server and Buffalo Wild Wings® will donate
10%* of your total bill (not including tax, gratuity or promotional discounts) to our organization.
Buffalo Wild Wings strives to support our community and the organizations and sports teams within it.
Together we can make a positive impact and help keep our community working and playing together.

(Show this ticket to your server on the date & time listed below.)

SARCOIDOSIS OF LONG ISLAND
April 3, 2019 • 11:00 AM - 12:00 AM

1986 Middle Country Rd. • Centereach, NY • 631-737-9464


5th Annual Sarcoidosis Awareness Walk
April 20, 2019
Heritage Park
633 Mt. Sinai Coram Road Mt. Sinai, NY 11766
Time: 9:30am-12pm
So much fun this Year!
We want to Celebrate our 5th Anniversary with a Bang!
We will have fun for all ages! 
Walk, Raffle, Music, and Vendors! 
It isn't just a Walk it is an Environment!! 




Sarcoidosis Awareness Month Support Group Meetings!

Please anyone who has Sarcoidosis or is a Caregiver or wants to know about Sarcoidosis in the New York area please come down for our Sarcoidosis of Long Island Support Group Meetings for 2018:

Sunday, January 20, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

Sunday, April 14, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5


Sunday, July 14, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

Sunday, October 20, 2019
6:00 PM - 8:00 PM Sarcoidosis Support Group (Approved) JTM Conf Rm 5

at Mather Hospital

75 N Country Rd, Port Jefferson, NY 11777


Conference room #5 from 6pm-8pm.

Please come down and be heard and learn!! 




Great News!!


I just received a tremendous honor in the December 28, 2017! I was named in a local newspaper The Village Beacon Record News. People of the Year! I am totally honored and totally surprised!! I want to thank Sarah Anker, Valerie M.Cartright, Jane Brittingham Bonner Sandusky, William Doc Spencer, Leslie Kennedy, KevinLaValle, Kara Hahn and all of The Town of Brookhaven and Suffolk County Legislators for their support! I want to thank CathleenTerrano, Pamela Beller Capotosto for your amazing help and support! I want to give a personal thank you to Foundation for Sarcoidosis Research Ginger Spitzer and Kelli Elaine for all of your support and help! Thank you to Carolyn HornDumond, and everyone else, too many to name! As many of you know I don't do this for personal accolades, but am so happy I can help all of those who have Sarcoidosis and any other Rare diseases! I truly am in tears with seeing this! I love you all!!
I just looked online and saw I am in 5 of these newspapers! 
The Village Times Herald
The Port Times Record
The Village Beacon Record
The Times of Middle Country
The Times of Smithtown
http://tbrnewsmedia.com/epaper/


News Articles About Sarcoidosis and Sarcoidosis of Long Island!

I am so grateful that my work is being recognized by so many so that Sarcoidosis and the Rare Disease community gets the recognition it deserves.

https://sarcoidosisnews.com/2018/01/02/n-y-sarcoidosis-activist-plans-nonprofit-fund-mental-health-counseling-rare-disease-patients/

https://globalgenes.org/raredaily/rare-leader-frank-rivera-ceo-of-sarcoidosis-of-long-island/

https://globalgenes.org/raredaily/frank-rivera-sarcoidosis-advocate-shares-cautionary-tale-on-the-value-of-awareness/

https://www.thriveglobal.com/stories/25259-my-life-as-a-rare-disease-patient




Sarcoidosis Walk Website